Today's guest is Lynn, from
My Life as an Ungraceful, Unhinged and Unwilling Draftee into the Autism Army .
My Life as an Ungraceful, Unhinged and Unwilling Draftee into the Autism Army .
Beside the fact that her title is so long it takes up an entire line of text, I love her blog and follow her on twitter ( @autismarmymom) as well. I consider it quite a feat to have begged, cried, and threatened have had her consent to being here today. Show her some love, in the Monster House tradition.
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Certain words and phrases automatically strike fear in the hearts of parents of autistic children. Summer vacation. Low battery. Playhouse Disney is now Disney Jr. Seriously, was that last one necessary?
For me, another one is “play date”. Since social and play skills are a pretty standard deficits amongst children with autism, we are often encouraged to organize play dates with typically developing peers so that our kids can model their play schemes and behaviors. Because everything that typical children do is so much awesomer than what our kids do. Uh huh.
Organizing play dates with other children on the spectrum can be just as dicey. On one hand, it’s nice to have a fellow special needs mom to commiserate with. On the other hand, quite frankly I can barely stand my own ASD child half the time, let alone someone else’s. Because my kid isn’t unpredictable enough, let’s add another one into the mix and see how much more combustible we can make a situation.
Last month, Audrey was invited to a birthday party for one of her classmates. She’s in a private autism school, so all of her classmates are on the spectrum. After the party, the birthday boy’s mother emailed me to feel me out about organizing a play date. She proceeded to lay out for me all of Connor’s issues and deficits, telling me that he generally prefers to play alone and “can get aggressive if another child gets in his ‘space’.” She probably felt the need for full disclosure, which on one hand is sort of nice, but on the other…is it wrong for me not to be too anxious to schedule a play date?
Shortly afterwards, the mother of Audrey’s BFF and classmate Grace Anne received virtually the same overture from this mother. But she had an extra paragraph in hers:
“I'm not sure how they get along, actually. This past week there has been something going on between them at school where Connor says one of his favorite things like Alphablocks and Grace Anne changes it to something cuter like Alphablock Cupcakes. I told Connor it is because she is trying to be his friend, but he doesn't get it and says that he wants to nail her mouth shut with boards.” (Emphasis added)
Whoa! Sign me up, right? Yeah, we shared these emails with each other in the spirit of “Is it me or is this kinda bizarre?”, as well as to compare notes about how we were going to respond. Grace Anne’s mom came up with an excellent response, pointing out that our kids already spend 30 hours a week together in school and that when it comes to constructive play dates it was probably best to expose them to other peers. I, on the other hand, told her that we were moving to New Zealand.
This story illustrates a certain kind of politics when it comes to play dates amongst our ASD kids. Everyone wants their kid to be around, if not typical, then “higher-functioning” kids. But if most of us are somewhere in the middle, there’s always someone “higher” and there’s always someone “lower”. I may be reticent to have Audrey participate in a play date with a kid who displays aggressive behaviors like Connor, but trust me, there are plenty of kids that aren’t lining up for play dates with Audrey.
One time, a mother pulled her daughter out of a summer school class because she started mimicking Audrey’s hand flapping. And I was all, “Your daughter? The one who tantrums non-stop? That one? Seems to me that you’d be happy to swap out a little hand-flapping if it shut her pie hole for a few minutes.” See how ugly it can get? Would I be dating myself if I quoted the great Tony Manero “Everybody dumps on everybody” speech from Saturday Night Fever? Yes? Never mind.
So does this serve to highlight yet another difference between parenting typical versus special kids? Typical parents are generally happy for their children to be amongst the smartest and most advanced in any room, but if the same is true for a special needs child we yank them out of there faster than you can say “positive peer models”. If that’s the case, then maybe those typical-ASD play dates are a win-win after all.
Lynn is the mother of Audrey, a beautiful and amazing 6 year old girl with autism. Lynn's blog is "My Life As An Ungraceful, Unhinged, and Unwilling Draftee Into the Autism Army". You can check it out at http://www.autismarmymom.com
